Wednesday, June 10, 2009

JUNE 10, 2009


you know it's good. And, so, I share with you my laugh-out-loud moment for the day.

I was reading some blogs on my lunch break, and came across one for a fellow colon cancer survivor. She has since stopped blogging, as a way to move on from her disease and to move into the next portion of her life. Her second to last posting, though, was priceless. She had just gotten the results of her latest scan, and the results came back NED (No Evidence of Disease). Very cool.

Her reaction? "Take that, stupid-ass cancer. Or, should it be stupid, ass cancer?"

Oh my good Lord. This is the funniest thing I have seen in DAYS!

So, my new line when asked what kind of cancer I was diagnosed with? Stupid ass-cancer. LOVE IT!!! Now, I need to convince MZ to make a tee shirt. He already has the basic idea 
here.

P.S. If one were looking for a fashionable and desired gift for the upcoming birthday girl, this would be a great option. XL in the yellow or blue, please. :-)
Comments:
love it that you love it!
: )
that made me smile too...
June 10, 2009 at 5:30 PM
Blogger Jill said...
*chuckle*....
June 10, 2009 at 5:39 PM
Blogger Tina said...
Thanks for the laugh!
June 10, 2009 at 6:19 PM
Blogger Caroline said...

Ha, ha, ha, we need to always see the humor in everything - especially cancer.
June 11, 2009 at 3:51 AM

Tuesday, June 9, 2009

JUNE 9, 2009


There is a project that I came across where amazing group Planet Cancer is looking to find out what young adult cancer patients would like to see in an ideal AYA (Adolescent/Young Adult) Oncology program. See Kairol's blog here to read more about this amazing program. Do you have ideas on what you would like to see? Let her and I know. The more people that get information into the hands of the people changing the world, the better.

By the way, Kairol is with i[2]y and work with Matthew Zachary (my new mentor!!!). They have a wonderful radio show on Monday nights called "Stupid Cancer Radio Show." Check out 
stupidcancer.com for more information. I highly recommend it. It was an AWESOME show. If you missed it, go to the website for information about downloading podcasts of previous shows.
Comments:
Caroline said...

I keep up with this site as much as I can but missed this show. I consider myself an honorary member because I was 19 at my first diagnosis. Thanks for sharing.
June 10, 2009 at 3:26 AM

Saturday, June 6, 2009

JUNE 6, 2009


And, here we are again. On TV. Woo!

This is a report from the Cancer Survivor Day Celebration at The Wellness Community today. I will post a bit more about it in a moment, but here's the video from one of the TV stations that interviewed me. Yes, one of them. I had two courting me. (It was pretty cool...)

I am still looking for the other one.

Comments:

Tina said...
so cool!!!
June 7, 2009 at 7:56 PM


Later:


First, congratulations to all cancer fighters and survivors. Tomorrow is Cancer Survivor Celebration Day, and I think I would be remiss if I didn't recognize my fellow fighters. We rule. This isn't a choice we have made, but it's one we have made the choice to LIVE with. What other choice is there? I don't like to think about it.

Now, how did we celebrate? Well, the kids and I headed to TWC (The Wellness Community) for their celebration. Earlier this week, Paula and Jamie (the Executive Director and my group leader) asked me to accept a check on TWCs behalf from the Phoenix Suns. So, the kids and I headed down, ready for just about anything.

We got out of the house fairly early and got to the house at what I thought was early. But, the parking lot was already mostly full. I am so glad we got there when we did. The kids and I played in a bubble pool, got balloon animals (Julia got a flower, a monkey, and a kitty - Kevin got Lightening McQueen and something else that I can't remember right now...), Julia got her face painted, and Julia and I made beaded necklaces from a company called Beads of Courage. (They do bead work jewelery with young cancer patients in the hospitals, among other things.)

Then, at 10:30, the kids and I got our official TWC tee shirts on, got all prettied up, and headed out to accept the check for TWC. What a chaotic mess, and what fun! The CEO/owner and another part-owner were there to present the check, the Phoenix Suns Gorilla was there, they had other kids there with us - it was AWESOME! Basically, we all stood up in front of about 100 people while Paula introduced the CEO/owners, who both gave a nice speech about why they are giving their largest donation all year (!!!) to TWC, and both told of their own personal stories of involvement with the group. Then, they brough out one of those huge checks that we all would like to see - for $100,000!!! Unbelievable. They presented the check to me, there was the obligatory pictures of all of us holding the check, and then they asked me to say a few words, which I did. After that, the Suns Gorilla came bounding into the room, whereupon Julia was given the duty of presenting him with bananas and a tee-shirt. Very cool.

During my speech, Julia asked if she could speak to the group, and the crowd thought that was the cutest thing. Poor Kevin was NOT nearly as impressed as Julia. He's a pretty quiet kid and doesn't like too much noise or activity, so this was WAY too much for him. Then, we put a 5 foot tall jumping gorilla into the mix, and well, he wasn't happy.

Afterwards, I had a couple of TV stations ask to speak with me, so for the next hour, I was being ushered around from one location to another, talking with people, being introduced, and saying my piece. It was truly an honor. I have posted one of the videos - as we speak, I am watching the other news station to see the story, and as soon as I can find it, I will post it as another link.

The rest of the day was spent talking with other survivors, including people that I knew and new friends. My friend Anissa was there, and I can't wait to see the pictures she snapped of everything. The kids and I had a wonderful time, and it was such an honor to be there to join in with those celebrations.

As soon as I have pictures and updates, I will let you know. Meantime, I should also post that Mom and Levi went to the i[2]y event in Syracuse this afternoon, and met up with MZ and Aaron. Can you say JEALOUS! I am so glad that they went - thank you a hundred times over to them. It means so much to me to have that connection, and I can't wait until we can start having those events here.

All right - tired baby is crying about something which I am sure is a major catastrophe....LOL!!!!

Comments:

Amanda: said...
Sounds awesome! What a huge honor - and an AMAZING donation!!!
June 6, 2009 at 7:28 PM
Blogger Carol Urban said...
As I have said before, and will most likely say again, you are amazing! God gave you such a gift to be able to speak in front of people and to speak for so many people! Way to go! I am truly proud of you!
June 7, 2009 at 11:15 AM
Blogger Dennis Pyritz, RN said...

Open invitation to you and your readers to participate in the Being Cancer Book Club. This month we are discussing “The Last Lecture” by Randy Pausch. “...the lecture he gave ... was about the importance of overcoming obstacles, of enabling the dreams of others, of seizing every moment (because “time is all you have…and you may find one day that you have less than you think”). It was a summation of everything Randy had come to believe. It was about living.”
Monday is Book Club day; Tuesday Guest Blog and Friday Cancer News Roundup.
Also check out Cancer Blog Links containing almost 200 blog links and Cancer Resources with 230 referenced sites, both divided into disease categories.
Please accept this invitation to join our growing cancer blogging community at www.beingcancer.net
Take care, Dennis
June 8, 2009 at 4:04 PM

Friday, June 5, 2009

JUNE 5, 2009



Was in a blog last night, commenting, and typed these three words: Normal is relative. And boy, did it strike a nerve. I think I may make up a tee shirt.

I know I'm not the first person to come up with this. I know I won't be the last to think it's a great saying. But, if a cancer patient doesn't understand how significant of a statement this is, I don't think anyone else can, either.

Something to think about on a Friday...

Tuesday, June 2, 2009

JUNE 2, 2009


The kids and I had a great weekend celebrating Kevin's birthday. Well, except for the bitchy part on Saturday. It seems that, since chemo, my hormones (apologies to the people that don't want to read about female issues - please skip to the next paragraph if this is you) have been just playing havoc on me. My periods are, for the first time in my life (literally) fairly consistent, and then PMS - well, I scare Satan. Not good when I am single-parenting it, but I apologize and we have ice cream and all is well. It's been buts, though. I have my annual exam with THAT doctor next month, and I am hoping to ask him about this. No pills, thank you very much, but are there, perhaps, supplements that might help to quell the demons?

Kevin's birthday was Saturday, and after my bitch-fest, we had a blast. I filled the pool, Julia played all afternoon (Kevin was napping), then I think we had dinner (Saturday is so long ago) and then I KNOW we had ice cream. The kids had so much fun - we got vanilla ice cream, chocolate and caramel sauce - the kind that hardens on the ice cream, nuts, whipped cream, and cherries. Big fun. Levi was joking about the kids being crazy - at the 45 minute mark post-sugar, I figured I was in the clear. Hung up with Levi, and my children turned into Hammy the squirrel from the movie "Over The Hedge." LOL! After an hour of that, I made them go to bed and bounce off the walls in their rooms for a while. :-)

Sunday, we hung out, cleaned, then went to Kim's for her son Dylan's birthday party. Wow - she has an amazing house, wonderful friends, and a HUGE yard. They had rented a water-slide-bouncy-house thing, and the kids were in heaven. It was wonderful to meet her family and friends, though being introduced to them as her "colon cancer survivor friend" was a little disconcerting. It made me proud, though, and gave me yet another reason to look at what I went through as a blessing - I am helping her and her family go through something life-altering. Maybe I can help, just a little bit.

I got some pretty sad news this weekend. Betty Rose DeCarlo, a friend of mine through TWC, is not doing well and was moved to a hospice facility near me yesterday. She is a stage 4 colon cancer survivor, and unfortunately, her tumor recurred and between that and a burst colon, her body can't keep up. Basically, they are making her comfortable until the end. It's so hard - I haven't been able to visit her in the hospital. I feel awful about this - Betty was a lifeline for me while I was in the midst of chemo - she was always so upbeat and funny and positive. And yet, this happens to her. It's a hard reality to have to face, so close to my remission, my anniversary, and my upcoming tests. I just don't have it in me to go see her like this. I need to remember her as I see her in my head. I don't think I have the strength to go to hospice. I know that's a disservice to her, but I just can't do it. Not yet. I will honor her, remember her, cherish my time with her, and make her proud. That I know for sure. I have to - that's why I made it.

As my mom said, this is something I have chosen to immerse myself in. During a conversation, I commented to my mom that it's going to be hard when I can start to count the people I have lost to cancer. She rightfully commented that no, it's going to be hard when I lose count. So true - unfortunately, it looks like Betty is going to be the first since my own diagnosis. Well, that's not true (I have lost other people, too), but it's the first since I took this on as a personal battle. I don't want to go back and look at who I've lost. I can't. I have to keep looking forward and knowing that I am helping.

I have spent some time over the last couple of days worrying. What if...... I have questioned my own body, my own aches and pains, my own coughing, and panicked about what the root cause is. Could it be? Is it? I was making myself crazy - then, I did what I do best - I made a list. I wrote down concerns, started question lists for all my docs (oncology, surgeon, OB, dentist) and know that as long as I remember to take them with me (I have been having a HELL of a chemo-brian week), I will be okay. I can ask the questions, have them answer my concerns, and move on. Hopefully.

On a happier note, I have joined Imerman Angels, which is an organization that pairs up cancer fighters (patients) with angels (survivors), to ensure that the fighters have someone to talk with. Their long-term goal is to provide every cancer patient with an angel within 24 hours of diagnosis. I look forward to helping them in their goal.

Let's see - what else? I am working with i2y to get that set up here in Arizona, and I have an upcoming CCA meeting. OH! I got in touch with the people that I met at the Memorial Day parade this week, and I am going to talk with them more about their West Valley Cancer Connection group later this week. They have a connection to TWC that I don't get yet, but I have plans to discuss that this weekend.

This weekend - wow. On TWC news, I am going to try to attach a very large file to this post - it's the cover to the bi-monthly calendar that TWC mails out to their (gulp) 16,000+ participants, plus doctors offices, etc. And, who's featured - that would be my babies and me. Woo! So proud. And, we will have more pictures from a special event that's taking place this weekend at TWC that we have been asked to participate in. Very cool - unbelievable.
If you want to see the entire calendar, comment and leave me your email, and I will get you the entire pdf. It's awesome!!!

All right, I am feeling better. I am struggling a little this week, between having the kids full-time (well, sort of), being alone with the houses, bills that are piling up and no money to pay them, and just the overall sense that I should be doing MORE, I was feeling pretty down this afternoon. I snapped at Kevin while Levi was on the phone, and he got worried. I knew I needed to do something. Is it hormonal - who knows.....so, I worked out, and then I came in here to sit and get things off my mind. Hopefully, this helps. I know it's going to be a long weekend - we have a friend coming into town toting his (count 'em) 2 kids, his cousin, her 3 kids, a truck and trailer, and a partridge in a pear tree. (Just kidding about the last part - I hope!) It's going to be CRAZY bisy - Friday night, groceries and hopefully cleaning the house. Saturday - off to TWC by 9am, back by 2pm. Crew gets here in the afternoon. Sunday - recovery. Next week - chaos at work as people come back off of travel. Next weekend - CCA meeting at our place.

When is my vacati......wait. I don't get one of those, do I? I mean, Syracuse yes, but it's going to be crazy. Hmmmmm......maybe I should look at my tattoo trip as my vacation......let the countdown (and fear factor) begin - 18 days.

Sad. Very sad.

Comments:

Carol Urban said...
This past September, a month after I got out of the hospital, a very dear, elderly friend of mine had her cancer reoccur.

She didn't want to burden me with the news while I was going through chemo and dealing with cancer myself. She was such an inspiration to me. Always sending cards, emails and phone calls to boost my spirits.

I went to visit her in the hospital and while it was devastating to see her like that I was able to comfort her and tell her how much she had meant to me during my cancer treatment and what a love and joy she had been to me.

I kissed her forehead and hugged her, then we said goodbye. Two days later she passed. I would have had severe regrets had I not gone to see her. I have good thoughts about doing this. It eased me through her passing.
June 3, 2009 at 5:59 AM
Blogger Nancy said...
I can understand how you feel sweetie....when they brought my brother in law from Fort Worth out here knowing it was stage 4 lung cancer i fought hard with my self to go and see him.Well....that gave my the strength to be there for him to the end and it was very rewarding to see that in his eyes he felt safe and knew that he would be taken care of.If asked to do it over again I would..with no second thoughts.I was the hardest thing i have put myself through but the most rewarding to both of us.You are so strong you will make the right decision for both of you.Please if you need to yell or just talk you can use me any time baby.I am just a phone call away.I love you so.
June 3, 2009 at 2:58 PM
Blogger Tina said...
Hi Michelle! You are one busy lady! I would hate to have Rich gone; I admire you for being so strong. I hope you 2 can be together soon, this is not a good time (is there ever a good time?) for you to be a single parent!
I am honestly dreading the time someone I know dies from cancer. Its just too close, I don't want to think about it. I am avoiding thinking about the "what-ifs" in my own future as much as possible. I completely understand how you feel, and you need to do what's best for you--you already do SO MUCH for everyone else. Please put yourself and your family first--you deserve it!!
Take care!!
Tina
June 4, 2009 at 9:59 AM
Blogger Tina said...

HI Again! Will you send me the pdf of your wellness newsletter--looks interesting! And its so cool that you have your pic on there!!
nuttyoaks@gmail.com
Thanks!
Tina
June 6, 2009 at 9:02 AM