Tuesday, August 17, 2010

AUGUST 17, 2010


So, I suck at updating this blog, apparently.  I am sorry.  I will try to make this better from here on out.

:-)

I don't think I have much to update.  Well, that's not right.  The kids are home (!!!).  It was SO good to have them back home, though a bit of a change.  Their laughter and noise and mess makes the house seem like home, which is really all I want for all of us.  It's been a wonderful time having them back - they were so happy to be home.

Both Julia and Kevin started school last week.  Julia started third grade, and is in a new school.  We still have some concerns about her schooling, but we are hoping that this new school will help us get her to where she needs to be.  It's tough having to fight every year for your kid, but I wouldn't NOT do it - I need to make sure that she gets what she needs, and if being a pain in a teacher's butt is the only way to get it done, then so be it.

*ahem*

Kevin is happily starting another year in preschool.  He has made SO MUCH progress that it's unreal.  He loves his teacher and his bus driver/aide (they are much better than last year's folks).  Hopefully this is maintained all year long.



Aren't they getting BIG?!?!  It blows my mind when I look at these pictures.  Where did these kids come from, and where did my babies go?  (Honestly, my babies are still here - I love them at this age - they are old enough to do some things on their own, but still call me Mommy and need me.  It's perfect....)

Did I tell you that I got the results from my colonoscopy back?  The reason they pulled my retest date back in (from 3 years to 1 year) is that the polyps they found were adenomas, meaning that they were the potentially pre-cancerous type.  Blech.  Bastard cancer.  BRING IT! 

I haven't yet had my follow up with my onco - that's next week.  They've rescheduled my appointment three times now, and I finally told them that if they pushed it one more time, I was going to take my cancer business elsewhere.  Miraculously, they were able to fit me in.  Imagine that.

What else?  OH!  I leave on Thursday to head to Austin, TX, for a LiveSTRONG young adult cancer survivor retreat.  I am SO SO SO excited.  My best friend Sharon lives in Austin, so I'm flying in on Thursday afternoon to spend the night with her and her family.  We'll spend most of Friday together, but then she's going to drop me off at the LiveSTRONG headquarters for a tour.  There are about 25 other ppl attending the retreat, and about 6 or 7 of us attending the tour.  Maybe we'll run into Lance....hardly likely, but a girl can hope.  :-)  I have already been in contact with some of the folks attending, and I cannot wait to meet them in person.  It's going to be an amazing weekend.

Beyond that, Undy 5000 planning is well underway.  We have an amazing line-up of things happening, including appearances by local celebrities, local sports mascots (Phoenix Suns gorilla, etc.), bounce houses, face painting, etc.  It's going to be a wonderful event, and while it's a ton of work, if we help ONE person, then it's all worth it.  Have you signed up yet? 
http://www.undy5000.com/

What else?  Levi's job is going, well, he's working (not getting paid, but he's working).  We'll know more about specifics (like getting paid) next month.  There is a game plan, but I'll elaborate more once it's all in place.  I've become very superstitious lately, and I don't want to jinx anything.

It's hard to imagine that we are coming up on the anniversary of 
Kim's death next week.  So much has happened since she's been gone, but her legacy lives on in ways that I don't think she could have ever imagined.  I miss her terribly, and I've been thinking about her a lot (there have been dragonflies all over the place).  I try to remember what she taught me, what she made me realize, and how I can make myself a better person for having known her.  *sigh*  I hate effing cancer.  I want to celebrate more remissions and no more deaths, but I have to be honest with myself and remember that I've chosen this path - I'm going to lose some friends.  I need to let this fuel my passion and fire.  It still sucks.

One last picture - as you know, the Tour de France was last month.  Lance Armstrong didn't win, but he made a hell of an impact on the last day by (well, he and his entire team) wearing a non-sanctioned jersey with the number 28, honoring the 28 million cancer survivors worldwide. Very awesome.

Along the route of the TdF, Nike sponsored  the chalkbot, which chalked messages of inspiration along the race route.  Facebook had a page where you could submit a message for consideration.  I submitted mine, and it was chalked along the very route that Lance and team road, inspiring millions of us.  How COOL is this?  I was so proud - it's a very little thing, and surely no one in France paid attention to it.  I imagine that it didn't mean much to anyone else besides me.  But, here you go.  

This is my Summer de Lance, apparently. LiveSTRONG event, Ulman/LiveSTRONG Cancer-to-5k Training (which is going swimmingly, by the way), and this. Viva la Lance!  And, Viva la Michelle!

Comments:


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August 20, 2010 at 8:07 PM

Thursday, July 15, 2010

JULY 15, 2010


Update on Levi's job - there isn't one.  Yet.  Hoping to hear something this week.  It's been a long couple of weeks, and the physical stress this is putting on us (nevermind the emotional and financial stress) is starting to take its toll.  I'm not impressed.

Kids come back next week - I can't wait.  I took Friday off to spend with them - I miss them something awful, though it's been wonderful to have the alone time with Levi.  Made us realize we need to make time for 2-person vacations more often.

I have to run to my doctor's office shortly - I need to have them sign some medical release forms.  I'm signing up for the Cancer to 5k training program again this year, and I'll be running in the Undy 5000 in October.  I'm also working on getting a travel scholarship for a LiveSTRONG retreat for young adult cancer survivors in Austin in August - hoping I can make it all work out.  Need to coordinate getting the tickets paid for (they don't reimburse you until you get to the retreat), and work on making sure I have care for the kids (as I'm optimistically hoping Levi will be working by then).  *sigh* 
Comments:


Michelle, I think I missed something. Did you post the results of your PET scan? I didn't see it but wanted to find out how it went. I think of you and pray for you every day. I think I'll start praying for Levi's job now in addition to continued prayers for your health.
July 15, 2010 at 2:03 PM

Friday, July 9, 2010

JULY 9, 2010


Path reports came back benign for polyps in the colon.  Can't get the information on what type they are, so I'm working to get a hard copy of the report to try to determine whether I need to be concerned.  I am going to assume they were adenomatous.

When I had my scope 2 weeks ago, the doctor told me I could wait three years before coming back.  When I spoke to the medical assistant (who wasn't very helpful, and seemed in a rush to get off the phone...), she said that Dr. M wants me to come back in a year.  Hmmmmm....

Needless to say, I'm going to be getting a copy of all reports and trying to interpret them myself.

Either way, they are out and can't turn into cancer.  Success - and THAT, ladies and gentlemen, is the power of preventative screening!

Comments:

Whidbey Woman said...

Rejoicing with you!
July 9, 2010 at 3:39 PM

Thursday, July 8, 2010

JULY 8, 2010


Just took the message from the oncologists office.  PET scan came out clear.  I made it to two years post diagnosis.
As a celebration, I'm going to work out, then have some ice cream.  Yes, it is counterproductive.  I don't care.  ;)
*sigh* 
Now, we push towards that elusive five year mark.  

Comments:

jnwhiteh said...
Yay! Yay! yay!
July 9, 2010 at 2:22 AM
Blogger Amie said...
Woohoo!!! Great news :)...you deserve to celebrate!
July 9, 2010 at 9:29 AM
Blogger PapaDragon said...

When Ice Cream is used in a celebration of FANTASTIC news, there are no calories!
September 12, 2010 at 9:09 PM

Wednesday, July 7, 2010

JULY 7, 2010


This past week has been another doozy.  Because, you know, a stable life is a boring life.  Or, something like that.  At least that's what I keep telling myself, in the hopes of convincing myself that this semblance of stability is really unnecessary.  And unwanted.  

Levi lost his job last week.  Again.  Not of his own doing - the short story is that the company abruptly closed its doors due to a partner that died (ironically, from cancer).  He financially screwed over the remaining partner, who was forced to close the company down and declare bankruptcy, with about 2 business days notice for the employees.  Thus, last Thursday was Levi's last day with this company, and he is currently unemployed.  There are some things in the works, and while I'm trying to have faith, it's difficult.  I'm trusting that things will work out the way they are supposed to, and that this will all be but a memory in a few short days/weeks.  

Last week's really crappy news culminated with receiving Levi's final paychecks, which were shorted by about $400 (times three weekly paychecks).  Not good.  The situation has been resolved, but we didn't have confirmation of this until yesterday, so you can imagine that things over the weekend were a bit stressful.  

Add to all of this the fact that I'm in the midst of a good amount of change at work, as my manager is relocating to China, and you can imagine where that leaves me.  I don't know who her replacement will be, nor do I know what's to happen with my position if that person isn't local.  I'm feeling some pressure regarding the uncertainty of that, which is always fun.  I think it will all work out, but I have to wait until the big boss gets back to hear news.  Blergh.

I don't like waiting.  

At this point, I'm muddling through each day, desperately missing my kids, glad they aren't here for this mess, and trying to figure out what's going to happen next.  My 6-month oncologist appointment is next week, and I'm thinking (hoping) the news will be good.  Pathology results from my colonoscopy aren't in yet, as far as I know.  I have the CD from my PET scan, but I haven't looked at it yet.  It takes forever to load onto my computer, and I'm actually nervous to look at it and read something that I might misinterpret.  So, next Monday, I'll hopefully have the news that I passed the 2-year mark, which is statistically the time frame in which a recurrence will happen, if it's going to.  Given the journey over the past two years, and my tendency to be on the short end of the stats (i.e., I tend to be in that 10% or less grouping of people with side effects, etc.), I won't be totally comfortable with my "remission" until I'm 5 years out.  Will that be the magic number?  Who knows.  For now, today is all that matters.  

Today is all that matters.  Yeah - I like that.  So, I'll live for today, (try to) not worry about tomorrow or yesterday, and enjoy what I've got.  New motto?  Maybe.  

On the upside, Levi and I saw four new movies this weekend - one in the theatre (thanks to movie passes).  The A-Team was great - don't go into it expecting to see the same thing you see in the series.  It's a great story line based loosely on the series, and is full of laughs.  I will say that it had almost too much action, which is the one complaint I've heard from others.  Having said that, the casting was wonderful (slight crush forming on Bradley Cooper - that smile is too cute!) and the movie was well worth the time spent.  Two thumbs up.  

The other three rentals we saw - Avatar (great special effects, old plot - in my opinion, a waste of time), Hancock (good plot, cool effects, awesome ending), and Couples Retreat (cute movie - not fabulous, but a good time waster - perfect rainy, Saturday afternoon TBS movie, if you know what I mean).  I'm sure I've rattled the Avatar-ians, but there you go.