Wednesday, April 28, 2010

APRIL 28, 2010


This is an article that was featured on Fox News, detailing a new study from Britain talking about a "new" standard of preventative testing for colon cancer called a flexi-scope.  I have some VERY mixed feeling on this.

First, the pros:

It's ALWAYS good to see this disease featured in the news.  As you know, I don't feel that this disease gets the same media that some other cancers do, and any press is good.

It's good to see clinical studies being done to determine if there's a less invasive, less time-consuming way to prevent this disease.  If there is, and I don't have to prep for the colonoscopy, bring it on.  Until then, I'm busy in July - prepping for the tube up my butt!

Um, I think that about covers it.  Onto the cons:

I have some real concerns with this article.  I'll try to keep this short and sweet, but I'm not promising anything.  First, let's take the statement that this test could reduce the number of deaths from the disease by 40%.  That's great!  However, they go on to say that colon cancer screening doesn't start until age 60 in the UK, but that this study was used on people in their 50s.  Um, what?  So, is this decrease in death due to THIS test, or overall testing?  Especially when you see that the results of this testing were taken against 113,000 people who weren't screened.  Again, is it the test itself, or general screening?

This test only scopes the lower part of the bowel.  The thought is that by using this, in conjunction with a fecal blood test, would be sufficient.  Hmmm.....but, what if I have a cancerous tumor in my upper bowel, and it's not bleeding.  What then, I ask?  What if my tumor isn't bleeding on the day I do the test?

The last thing (I think) that I'm going to go off about - their claim that this test only needs to be done once IN A LIFETIME.  Are you KIDDING me?!?!  If you have a polyp and it's removed, that doesn't mean your body doesn't make anymore.  Based on what I know about this disease, having a polyp removed gives your doctor enough reason to issue you an invitation to visit him or her again in 3-5 years (sometimes as soon as 1-3 years) to check to see if any more of the nasty little buggers have invaded your colon.  How is a one-time deal going to solve this issue?

All right - stepping down from my soapbox.  *sigh*  Deep breath.....in.....out.....

Comments:

Marisa said...
I heard about this latest study on the news this morning and like you, at first I was excited but as I listened further to the report, I became increasing upset. I agree wholeheartedly with what you are saying. I had my first colonoscopy at 41 (family history) and with good results and was told to come back for another in 5 years. When I went back for my second colonoscopy I was told the guide lines had changed to 10 years. I accepted that and went home but the more I thought about it the uneasier I got. I pressured my family doctor to refer me to a different specialist which he did and I got my second colonoscopy. My test were clean and I felt so reassured. With two good test under my belt I don't need another for 10 years unless I notice something going on.

I always teased my hubby (who doesn't have a family history) for years that I was going to arrange for him to have a colonoscopy for his 50th birthday. It just happened that he started to have some bleeding prior to his B-day so I insisted he see his doctor so he did end up getting scoped for his 50th however I was a little peeved that they only did a sigmoidoscopy.
April 28, 2010 at 4:14 PM

Later:



I'm not going to lie to you - I'm pretty lazy.  Which is why I'll post this link here, instead of re-writing the entire thing.  But, I'd like to ask you to check it out, and see what you think.  It's a posting on my other blog, and tells the story of a pretty amazing realization I came to last night.  It's the kind of thing you wish for once you have kids, and I finally realized last night that I have accomplished. 

Tuesday, April 13, 2010

APRIL 13, 2010


It is so hard to believe that this gorgeous creature is my daughter, and that she's 8 years old today. 


Like most moms facing the birthday of one of their children, today tends to be a day of reflection for me, looking back on my pregnancy with Julia, the birthing experience, and her life since the miraculous moment she was born.  We have had our struggles with Julia, but watching her grow up into this amazing child has been such a blessing.  She's an amazingly intricate and intimate child, willing and able to open her heart to anyone that is willing to share that experience with her.  She's funny, loving, and has a beautiful soul.  Her understanding of human nature (in spite of, or perhaps because of, her struggles with Asperger's) makes her one of the most caring people I've ever has the pleasure of knowing. 

Happy Birthday to the most amazing little girl.  I'm so honored to be your mom, and to be able to share your life with you.  While I'm anxious and excited to see what kind of young woman you are going to grow up to be, don't be too quick about becoming that person.  I'm perfectly happy with your innocent laughter, your joy in bodily functions (ahem), and your interest in make-believe.

I love you more than you'll ever know....

Comments:

Whidbey Woman said...
A beautiful tribute to a beautiful daughter!
April 14, 2010 at 5:57 PM
Blogger Jill said...

Beautiful post Michelle. Happy Birthday Kiddo!!!
May 3, 2010 at 10:27 AM

Monday, April 12, 2010

APRIL 12, 2010


Every once in a while, you see a picture that takes your breath away.  It stops you in your tracks, and makes you think.  Here's one of mine.

Why?  This picture was taken on Julia's birthday in 2008.  It was six weeks before I was diagnosed with cancer.  We held Julia's party two weeks after we moved into our new house.  My mom was in town to visit with us, and it was the first time any of the family had seen our new home.  I remember stressing about the move, about the old apartment (which we still had to clean out and close up, at this point), about school (I was attending on-line university), about the house being clean enough, about work, etc.  I remember this party as the one final "fun" time we had as a family before life changed.  We were so blissfully ingnorant of the changes coming at us like a freight train, and I sort of miss that sense of innocence and ignorance.

I look at this picture and it immediately takes me back to that person I was before cancer.  I can feel the stress creep into my shoulders as I think about the things I worried about back then.  Even in this picture, I can see myself thinking about school work, cleaning the house, unpacking the boxes, etc.  I don't think that I ever allowed myself to fully be in a moment, because I was always worried about what was coming up next and how I was going to handle it.  

To some extent, I'm still this way.  I can't sit still, because there is always something that needs to be done.  (I am very consciously working on this, and trying to get better at relaxing.)  If I'm sitting watching a movie, I like to know that laundry is in the washer and dryer, the dishwasher is full and running, and the house is clean. 

The difference between then (in the picture above) and now is that I am making very deliberate decisions about what I want to worry about.  I clean my house because I want to and I enjoy it, not because I feel obligated to (just in case someone stops over).  There is so much pride in seeing our family home cleaned up (not spotless, just tidy).  For the first time, I feel settled in a home.  We have curtains up in every room, toys strewn on the floor, dust on the knick knacks (again, tidy, not spotless), kids laughing, a beautiful breeze floating through the windows, cats purring, and each other.  There isn't much else I could want for. 

I don't worry about whether the floors are spotless (if you don't like it, here's a broom and mop!).  I have chosen to hold off my schooling until, um, I'm not sure when I'll ever get back to it.  I don't think about work when I'm not there.  I don't stress about the little things (or, stress as much). 

I would much rather spend time with my kids, laughing and pushing them on their new swingset (thanks to Nana and Papa).  I want to chase them through the house so that I can tickle them until they can't take anymore.  I want to spend time laying in bed, watching a silly meaningless movie with Levi, just because I can.  I want to hang out with my friends, enjoying their company.  I want to be able to sleep in on a Saturday morning and just lay in bed, relaxing and basking in the sounds of the house. 

I want to live my life like the picture below. Surrounded by my family, loving every minute I have with them.  Having family taking pictures of us all being silly.  Those pictures are WAY more fun than posed, formal pictures anyday. 



As I prepare myself for the 8th anniversary of the birth of our daughter (and, yes her 8th birthday, as she has reminded us for months now), I am reminded of how very much our lives have changed in the past two years.  I expect that you'll see several of these fairly reminiscent posts over the next couple of months.  Julia's birthday is kind of the beginning of a pretty intense time of the year for me emotionally.  We'll see where this year takes us.

Comments:

Whidbey Woman said...
Great post, Michelle!
April 12, 2010 at 7:10 PM
Blogger Jill said...
Excellent post Michelle. So much of what you said is who I am today. A whole lot of worry with a whole bunch of cleaning sprinkled on top...

I will be revisiting this post again and again...

Thanks for this.
April 16, 2010 at 8:44 PM
Blogger Marisa said...

a different perspective on what is important in life. you have a great blog here.

My mom died of colon cancer when she was 47 so it is never far from my mind. Last year I started what I hope to be yearly post...I call them "Bum Plugs" in an attempt to spread the word on the importance of early colon screening.I would love it if you could stop over for a visit at "Getting Back To Basics" and grab my "Live Your Life...Get Tested!" badge from my sidebar and add it to yours with a link to my post:

BOTTOMS UP - A BELOW THE BELT COMMENTARY ON A SENSITIVE ISSUE

My second "Bum Plug" will be posted on April 29th.

Please help me spread awareness.
April 19, 2010 at 12:35 PM

Thursday, April 8, 2010

APRIL 8, 2010


For a while, things were quiet.  Now, they are starting to pick up again, cancer wise.  Not with me....with others.  And, it's okay.

Earlier this week, I met up with folks that I have met through my blog.  Ron is a stage four colon cancer survivor who's still battling his beast, and he and his wife were in town this week visiting family.  We had the chance to meet up for dinner on Monday night, and it was fabulous.  I was so excited to meet up with them, and it was truly my pleasure.  Thanks for taking the time out of your vacation to hang with us!

I've taken some time off from working the various cancer advocacy stuff, and I think it's been good for me, mentally, especially since things look to be starting back up on a variety of planes soon - Undy 5000 planning starts later this month, followed by a meeting going through planning for the next couple of years for CCA locally.  Very exciting stuff, and while it's a little overwhelming to think about, it's all SO important.

I am hoping to get more involved with the i2y stuff again shortly (I've kind of let that slide, and I really want to get that up and going again soon.)  This week is Young Adult Cancer Awareness Week, and I totally dropped the ball on it.

I've had a couple of pieces of news from people that will have me back on the saddle helping folks with their own cancer battle.  All in all, they are without a doubt situation that I won't walk away from, but as I've said before, if I could get paid to do what I want to do, I'd be set for life.  :-)  I do SO enjoy helping folks, and when I can give them a piece of information that might help make a piece of this easier for them, it truly fills my heart.

I have also begun training in earnest with Cancer-to-5k.  I have been running about 15 miles per minute, which isn't GREAT if you are a runner of have been at this for a while, but for me, it's freaking awesome!  So, I will continue to do this, and work on making my body stronger and healthier.  I have a PET scan and a colonoscopy coming up in early summer, and I'm anxious about it, but I hope all will be well. 

Comments:

Heat said...
It's always nice to see a post show up here :)

Glad all is well!
April 8, 2010 at 12:15 PM
Blogger Whidbey Woman said...

Was so great to meet you and Levi!
We miss Arizona all ready... came home to a wind chill of 39 degrees with snow on the foothills. Brrr!
April 8, 2010 at 12:42 PM