Monday, June 28, 2010

JUNE 28, 2010


So, for obvious reasons, I didn't blog on Saturday, and you'll understand in a moment why I didn't blog yesterday.  To say that this weekend was a little rough is kind of an understatement.

Per my post on Friday, the majority of that day was spent prepping for the scope on Saturday.  I will say that, in my opinion, the prep I had this time was probably the worst of the three preps I've had to do thus far.  Drinking 2 liters of Crystal Light is NOT my idea of a good-time Friday night, but I did it and kept it all down.  It took me a bit longer than expected, but the end result was the same.  (I'll leave the details up to your imagination.)  Friday night wasn't much fun, though I did watch a few movies while waiting out the inevitable (and between) - Dodgeball and Robin Hood: Men in Tights.

Saturday morning, I followed the prep paperwork and stopped drinking 4 hours prior to the procedure timeline (which was 12:30 registration/1pm scope).  After I got my shower, I started feeling pretty light-headed, so I was grateful that Levi was driving.  We headed out, figuring that if we got to the facility early, we'd be better off.  Thank goodness we did.

When we got there, we waited in about 5 minutes before someone came out to greet us - not a big deal.  Except, she came out to tell us that the procedure had been cancelled.

Um, WHAT?!?!?!

Apparently, the office staff had left two messages on a number that I've repeatedly asked them not to call (i.e. not my cell phone), telling me that the procedure had been cancelled.  I told the lady that that was too bad, because I wasn't leaving the facility until a camera had been shoved up my butt.  She went back to see why my appointment as well as the other person in the waiting room had been cancelled.

When she came back, she indicated that the office staff had booked the procedures so that there were some gaps in the schedule, and they had moved my procedure up to 11am.  I showed her the paperwork I had been given, which clearly indicated that I was supposed to arrive at 12:30.  After much discussion, we came to the agreement that the office staff is fairly incompetent.  (The outpatient center the scope was taking place and the office are two separate entities, hence the problem.)

Thankfully, the poor lady that I spent 20 minutes yelling at was able to get ahold of my doctor as well as the other folks that needed to be present for the procedure, and they all willingly came back to the office to get my scope and the other person's scope done.  Whew.  Crisis averted.

They brought me into the prep room, and I will say that this was BY FAR the quickest prep for a procedure I've ever been through.  No questions about it.  The two blemishes during this part - Blemish #1: they asked me when I had eaten or had something to drink last - eating was Thursday night, drinking was a bit of water and black coffee at 8:30 that morning.  They all stopped and asked why I had something to drink that late.  I pulled out the prep paperwork that I had been mailed from the office and showed them where it indicated I could drink up until 4 hours prior.  They were not impressed.  Apparently, you aren't supposed to drink 12 hours prior to the procedure.  Well, not my fault - I was doing what I was told.  Blemish #2: they missed the first IV.  Because Arizona is so dry, and I was dehydrated from the prep, they had trouble getting the IV where it needed to be, and now I have a nice bruise on my right hand where the poor lady missed.  She felt so bad!  They did get the other hand done, which was a blessing, even though it hurt like a b*tch.

For the last couple of procedures I've had, they used propofol, which is an anesthetic that puts you in the twilight sleep.  Gets out of your system pretty quickly, and I've had good luck with it.  Yeah - that's on back order.  I don't know what they used this time, but it was some pretty potent stuff.  I don't remember much from the procedure at all... a bit here and there, but overall, it's a blur.  I remember them waking me up in the room, and trying to focus on the nurse's face.  It wasn't easy - I was so loopy, seeing double and triple.  Dr. M came in to tell me what happened, and I told her that I wasn't in any position to take that information - please go tell Levi. She did.  Getting dressed was quite the feat.  It was everything I could do to stand up to put my shorts on.  They got me into the car and I pretty much slept the entire way home.  Well, except for the moment when Levi stopped to get me a drink and some chips - I woke up for those.  :-)  I was still felling light-headed and loopy (more than usual) yesterday until around 7pm.  Then, I had trouble sleeping last night, probably because I slept most of Saturday away.

So, the results?  (If you've made it this far through my rambling, I applaude you....)  Two small polyps.  Otherwise, a clean colon.  Per Dr M, I don't have to go back in for another scope for three years.

I'm waiting to hear back from the pathology report on the removed polyps to determine whether I'll stick to that three years mark.  If they are non-pre-cancerous, I'm okay with that.  But, if those little bastards are pre-cancerous, I'm going back in next year.  No way I'm going to let this get the best of me again.

Blood work this afternoon (routine CBC and CEA counts).  PET scan tomorrow.  Then, the waiting begins in earnest. 

Comments:

Oy! What a day! I'm glad it all worked out. Do you know if the other person in the waiting room also had the procedure done?

Good thing you had all your directions with you! Are you planning to go back to the same place the next time you need one of these done?

Here's to polyps that are nothin' *clink*
June 28, 2010 at 11:20 AM
Blogger Whidbey Woman said...

For God's sake, don't you ever go back to that surgeon's office. Go somewhere else for your next Colonoscopy. That is absolutely ridiculous!!!!!! My blood pressure went up reading that post. No one should be treated that way. No one.
June 28, 2010 at 8:30 PM

Friday, June 25, 2010

JUNE 25, 2010


Today's the hardest day, when it comes to your colonoscopy.  Prep Day.  The premise is simple - your colon needs to be clean and clear for the doctor to adequately and clearly see what's going on in your pooper, so you have to spend 36 hours or so dealing with hunger to allow this to happen.  Very important, and well worth it (isn't your life worth 36 hours of hunger?  Mine is!).

Now, I will say that I'm fascinated by the variety of colonoscopy prep methods around the world - each doctor seems to have a different method, and it seems to be dofferent based on age groups, which I find very intriguing.  I've heard that some folks only have to fast for 12 hours (lucky dogs).   I have also hear of other folks that have been on a liquid diet for upwards of five days prior to the procedure (no thanks!).  Mine seems pretty middle-of-the-road.  No solid foods the day prior to the colonoscopy, only clear liquids.  Coffee, tea, soda, jello, broth (chicken or beef), water, etc.  It's not too bad - the only other real restriction is that what you ingest can be any color other than red or purple, as they can color parts of the color and hide nasties in there.

***Do you know how DIFFICULT it is to find pre-packaged jello in a color other than red?!?!***  I digress.

Anyways, today's prep consists of the aforementioned liquid diet, then the actual "prep" begins at 3pm.  Four Dulcolax (which is a laxative pill that helps move things along) down the hatch.  At 5pm, I mix 238 grams of Miralax (a powder laxative that can be mixed into any drink and leaves no bad taste) into either Gatorade or Crystal Light.  Shake, rattle and roll to mix.  Once it's all disolved, drink 8 ounces every 15-20 minutes until it's gone.  Then, the fun begins, and I won't leave my bathroom/sanctuary until probably 9pm tonight.  That reminds me - I need to stop by the video store and grab a few movies....

In the past, I've had to use a Fleet Phosphoro-Soda drink which was AWFUL tasting but only 4 ounces.  Last year, I used pills, which were easy but extremely salty and dissolved in my mouth quicker than I could swallow them.  Still, I didn't have to drink the gallon jug of crap, so I'm pretty lucky.  I'll let you know my opinion of this type of prep.  I imagine it's going to be about the same - not too bad, bearable but not much fun.

No matter what, though, when push comes to shove, I'd go through this monthly if it meant I never had to go through chemo again.  Hands down, this is MUCH easier.

Colonoscopy is at 1pm tomorrow.  Have to be at the site at 12:30 pm to get ready.  I'll try to update when I recover from the sleeping meds.  I'll also try to remember to update on twitter and facebook, too, so keep an eye out on those.  Meantime, I'm off to get some soda.  Yum!

Comments:

Amie said...

OOh...sounds rough! Let me know sweetie what you find out. Love you and you will be fine!
June 26, 2010 at 6:28 AM

Thursday, June 24, 2010

JUNE 24, 2010


My company sponsors a local blood drive about three times each year here at work.  As a cancer survivor, I assumed that I wasn't able to donate blood.  (Never mind that I never donated blood B.C. - that's another story, involving an unnatural fear of needles.)  I called the company that takes the blood here at work to find out the restrictions, and lo and behold, in spite of my cancer diagnosis, I was able to donate blood if I met some criteria.

Admittedly, I was surprised at this.  I have been told several times that I would be unable to donate until I was at least ten years since last treatment.  The lady I spoke with indicated that those regulations are very outdated, and the new ones are much easier to follow.

In my particular case, because I didn't have a blood cancer, my chemo ended over a year ago with no recurrence, and I was not anemic, I was eligible to donate today.  There were 40 questions in total that I had to answer (things like where have I traveled in the past 20 years, what my personal recreation life is - i.e., do I do drugs, etc.), and I passed.  My blood pressure was 106/68, which I thought was pretty kick ass.  My pulse was strong, I was not anemic, and therefore, I was eligible to have a needle poked into me and blood drawn.

I am so happy that I got the chance to do this.  Honestly, this isn't anything I had ever had the desire to do before cancer.  I was PETRIFIED of needles, and the thought of voluntarily going in for something like this was laughable at best.  Now....well, when you're poked innumerable times over the course of several months, this seems like a walk in the park.  And, it was, for the most part.  It was uncomfortable for about 5 seconds, but beyond that, it wasn't bad at all.  The best part - snacks at the end!  :-)

I learned that a single donation of blood can help up to three people - red blood, plasma, and platelets.  I told the lady I worked with (also a cancer survivor) that if I helped one, it was worth it.  If you are interested in donating blood, please contact your local blood donation facility to find out if your eligible.  You can donate every 2 months, and each time, your blood could save three lives.  Isn't that worth an hour of your time?

Tomorrow - prep for my colonoscopy.  Saturday at 1pm, colonoscopy.  Monday - blood work for CEA levels, etc.  Tuesday, PET scan.  Wednesday - eating whatever I want because I won't have any restrictions.  Follow up appt with my onco isn't until July 19th. 
Comments:
I was inspired to give blood after my father was diagnosed with colon cancer (he passed from it in 1999). Since then, I have been a loyal donor, and now that I am finished nursing my daughter, I am excited to get back to the phlobotomists. Hurrah for one more donor!
June 24, 2010 at 6:55 PM
Blogger joanlil said...

I was a blood donor for over 20 years and made more than 50 donations. I was greatly disappointed at having to resign from giving blood when I was diagnosed with Stage IV colon cancer in December last year. In Australia you are not allowed to give blood until you have been declared cancer free for 5 years. My husband rejoined the donor list when he had been prostate cancer free for that time. I look forward to doing the same - though it's not very likely.
June 25, 2010 at 3:39 AM

Monday, June 21, 2010

JUNE 21, 2010


Today, I turn 34 years old.  Pretty amazing, when you look at where I was two years ago.  Pretty amazing regardless, that I'm celebrating getting older.  But, wouldn't you?  Each birthday is a celebration of another year of living, breathing, and just being.

Each year brings new challenges, new successes, new failures (which are really opportunities to make things better next time 'round), new memories.  I relish in my birthday, not because of the presents (which are still welcome - I'm human after all), but because it's a way to celebrate and reflect and honor the past year's events.

Levi and I spent the weekend together.  It was truly awesome - we haven't done this in probably ten years, so it was truly a gift to both of us.  Saturday was his birthday - we started the day with a meeting for CCA, then off we went for lunch, some errands, and a birthday dinner of homemade enchiladas and chocolate pudding (his FAVORITE!).  Sunday, we woke up, hung out on the back patio with our coffee and the chickens, relaxing, reading, playing with our phones (they had to be reset and we lost ALL settings...), and just enjoying the gorgeous weather.  We spoke with the kids later that day, and each of us spoke with our Dads, to wish them a Happy Father's Day.  We also saw the movie I have been waiting on for over a year - Toy Story 3.

Some of you may not be familiar with my, um, well, obsession seems to be the best word but I don't think I care for it.  We'll call it a "relationship."  My "relationship" with Toy Story.  It began (ack!) 14 years ago when I was working in Disney World on the College Program internship in what was then the Disney-MGM Studios park.  I worked the Toy Story parade each day, keeping the masses back on the sidewalk and clearing the way for the parade to come through, complete with Buzz, Woody, the Green Army Men, etc.  I fell in love with the story line, and when TS2 came out, I made Levi take me to the movies (this was pre-kids, and he was less-than-impressed).  So, last summer, when the trailers started for TS3, and I found out it was being released on my birthday weekend, well, there was no question that I was going to see it.

And, we did.  Yesterday morning.  I'll try not to give away the entire story, but suffice it to say that I laughed out loud several times, I clapped during some parts (the 3D effects were VERY cool), and I cried at the end.  *Yes, Levi rolled his eyes at me.*  The storyline is wonderful, the jokes are hysterical, and the Spanish version of Buzz Lightyear was, by far, my favorite.

We also saw Iron Man 2 last night, and it was amazing - loved it.  Not as much as Toy Story 3, but I loved it.  Robert Downey Jr. just gets more and more gorgeous as he gets older.

So, enjoy your day - I know I will enjoy mine.  Working today, dinner tonight with Levi, then off with the girls tonight to celebrate my birthday and someone's recent engagement.  So exciting!  It's the longest day of the year, so make sure you welcome summer with a smile.  I know I have - so far! 

Comments:

CCW said...
Happy, happy, happy(!!!) birthday to the biggest ass-cancer's-ass-kicker I know! :-)
June 22, 2010 at 4:19 AM
Blogger angle45 said...

Very cool! I was just wondering what were the intial symptoms were? I have a good friend who is worried about some blood that was in her stool last week and we're seeing her GP tomorrow.
September 25, 2011 at 10:30 PM

Thursday, June 17, 2010

JUNE 17, 2010


I had a wonderful dinner with my Natty last night - Natty was one of Kim's best friends, and someone I have had the amazing blessing to get to know over the past year.  We met up to catch up, and it was (as always, when meeting with "the girls") amazing.  I am so grateful to have them all in my life, and to have shared such an intimate thing with them.  They have become so important to me (Randi, Erin, Natty), and I depend on them for my sanity more than I think they know.

Among many other things, Natty and I talked about Kim last night.  We talked about how difficult this time of year is for us, for a variety of reasons.  We are both still coming to grips with the fact that Kim is gone - realistically, we understand it.  But, looking back at where we are this year as compared to last year (when Kim was on a downhill slide), it's hard to think about and accept.  For Natty, she has personal things she's trying to reconcile right now, and that's compounding her emotions.  For me, it's my own issues dealing with the anxiety of my upcoming scans, being worried about those, knowing what Kim went through, wondering if I'm headed down the same path, what I'll do if that happens, etc.  It's just a lot to think about, and it's honestly exhausting.  I don't mind at all - these are converstaions I have to have with myself and I have to be (optimistically) realistic about, as it's a distinct possibility.

However, I refuse to stop living my life for fear of what might happen.  Natty and I talked about this last night, about how Kim dealt with the same things.  Kim and I had some conversations around these very things (which she apparently didn't have with others, so that's a special gift she and I had), and looking back on these conversations have helped me handle my emotions.

Dinner last night was, in a word, amazing.  I think Natty and I, while coming from very different backgrounds and situations, tend to think about things in a similar manner, and that helped us bond last night about the many things we discussed.  I missed the other girls, and I'm hoping to meet up with them soon.  Maybe next week for my birthday?  Who knows.

I told Natty that I'm going to visit Kim this weekend.  I haven't been to the gravesite since the celebration of her birthday after the carwash in September.  I haven't seen the headstone since it was installed.  I want to see that, touch it, feel the warmth.  I need to do this alone.  I think I need to be there, talk with her, mourn her.  I have been thinking a lot about Kim lately, and I need to have a chance to let out the emotions that are building.  I think more about Kim more when I'm facing my tests - I think it's inevitable.

*sigh*  So much to think about. 

Comments:

Tina said...
I was only involved with Kim from her blog, and through your's (which is wonderful by the way). It hit me hard when she died, and I am thankful that you shared your experiences with us. And I'm thankful that you still are sharings these emotions. I'm proud of you for the way you meet these feelings head on and deal with them. You don't run and hide from them and pretend they don't exist (although I'm sure there are times you'd like to!).
Hang in there-I'll be praying for continued NED!
Love,
Tina
June 17, 2010 at 12:44 PM
Blogger Jill said...
Thinking of yo uthis weekend and hope that you are feeling some peace.

(((hugs)))

Jill
June 20, 2010 at 11:32 AM


Later:

Testing blog posting through my phone. Have I gone high tech? We will find out.

Comments:

Michelle said...

Good Lord, it worked! My goodness, before you know it, I'll be in the 21st century!!!
June 17, 2010 at 3:34 PM

Thursday, June 10, 2010

JUNE 10, 2010


Does anyone else feel a kinship with folks you see in passing that are wearing a yellow LiveSTRONG bracelet?  I saw a person today as I was walking into work, and it dawned on me that I feel a connection to these people.  They have reason to wear these bracelets....hopefully, it's not "to be cool" but rather, to support someone who has battled or is battling this disease.

I wear my yellow and blue bracelets almost every single day.  There are very few days when I'm without mine.  I have worn them since I was in chemo.  I actually still have the very bracelets that I wore during chemo (even though they have broken).  It's a silly thing, really, but something I can't bear to get rid of.  I have extra bracelets at home, just in case.  I have different colors, and I can tell you what they all represent.  It's my way of supporting, well, myself.

Just curious on whether others feel this same kind of kinship with others sporting very obvious signs of cancer advocacy. 

Comments:

Whidbey Woman said...

Last week I noticed that my boss is wearing a blue braclet! I thought to myself, he knows someone with Colon Cancer. Or is he wearing it for Ron? It made my heart soar! Tonight I saw a person walking with a T-shirt on it that said "Hope," with the Relay for Life Logo. It really lifted my spirits :)
June 10, 2010 at 7:04 PM

Wednesday, June 9, 2010

JUNE 9, 2010


I haven't posted in a while.

Some of it is because I don't want to celebrate my remission while others are fighting their battles (both new and continued).  It seems wrong.  There's guilt involved, and while that isn't the way to think, I'm just being honest.

Some of the time, I don't post because I have so many thing going through my head that I can't keep them straight.  There are only so many hours in the day, and trying to keep up with things takes a toll.  There are times when trying to come to terms with cancer that will do that to you, too.

Part of it is what they affectionately call scan-xiety, or fear of your upcoming scans.  My colonoscopy is scheduled for June 26th (on a Saturday - how cool is that?!?!).  My PET scan won't be too far behind.  Regardless of the clear scans in January, I will continue to worry about a recurrence, until I'm reassured in July by my oncologist.  And then, until my next scans.

Lately, I've felt like my time is limited.  Not in a "I'll die someday" sort of way, but in a "my time is bound to be shorter than others" type of way.  I'm hoping that it's my brain dealing with the seemingly consistent reminder lately (for me) of how many people are taken from us due to this disease, and not an inherent "get used to thinking this way" sort of mentality, if that makes sense.  I guess I'm hoping that this isn't my mind's way of telling me what's coming.  Part of the scanxiety - I hope so.

Anywhoo, on that note, in the (hopefully) far off timeframe that I have to look at planning my last days on earth, I want to do what 
this kid did.  I want to have a big ole' party, complete with balloons and lots of fun activities.  I want a no-cry zone.  I want a party that no one will ever forget, that everyone will want to attend, and that I can be the star of.  I want my family there.  I want friends there.  I want people I haven't seen in years to surprise me.  I want people I've never met face to face there (a celebrity or two wouldn't be unwelcome....), to enjoy this party with me.  Basically, I want a celebration of life - not just mine, but everyone's.

Would you come to my party?

Comments:

I will totally come to your party - but only if you come to mine ;)

But if you come to mine, you're going to have to live for a long time, because I'm living to be 97.

Funny - Tom mentioned to me that the boy died within a minute of me opening your blog post (he knew about the party and was updating me).
June 9, 2010 at 5:46 PM
Blogger Whidbey Woman said...
Oh, Scanaxiety. It's going to be a long month.... Good luck, Michelle. Thanks for sharing that link. That kid had a good attitude.
June 9, 2010 at 7:46 PM
Blogger jnwhiteh said...

Nothing could keep me away.
June 10, 2010 at 2:53 AM