Wednesday, July 29, 2009

JULY 29, 2009

This might be one of the coolest ideas I have heard of in a long time. They make jewelery that is in the same shape as your scar. HOW COOL!

You all kind of know how proud I am of my port scar (and the other ones). My port scar is a visible reminder to me and others of what I have been through, and it's a source of pride and joy for me - look at what I have accomplished, and look where I am now. Even the multiple scars on my belly (from 2 C-sections, gall bladder removal surgery, and my colon resection) are gorgeous - they are my war wounds, so to speak.

The idea of having a tangible memory of my scar is so intriguing - I know my port scar will fade, and it does make me sad. It's become such a huge part of who I am, and it helps me define myself. That's part of the reason for the tattoo - look, see what I have been through, ask me questions, and let me tell you my story.

I don't know if this grosses others out - it's definitely a unique website and a funky idea, but I find it amazing....and, uplifting. It's so nice to know I'm not the only person who thinks my scar is beautiful!

Comments:

Carol Urban said...

My port surgery is tomorrow morning. I start chemo on Tuesday. Same regimen; Folfox with Avastin.
July 30, 2009 at 7:11 PM

Monday, July 27, 2009

JULY 27, 2009



So, it's been a while. Before I forget, the rant I promised you in my last post...

When I was at the drs office two weeks ago, I was bothered by my doctor's reaction to my tattoo as well as a couple comments she made or inferred. First, she seemed less than impressed with my tattoo. As I think I said before, it was more of a reaction that a mom would give to a child who disobeyed her - kind of a nasty look with a very guilt-ridden "Mmmmm-hmmmm." Next, when I told her of my involvement with CCA, TWC and i2y, she seemed very disinterested, as if what I was doing and telling her was taking time away from her.

Then, when I mentioned that I had gone to CTCA on behalf of i2y, she got very proprietary and business-like, almost as if I had gone to the enemy. from a business standpoint, I can understand this. Surely, she might be upset if I chose them as my primary oncologist rather than her, but all in all, it's my decision and should be based on medical needs, not business kindness. And, she showed no interest in my involvement with an organization that avocates for young adults with cancer.

So, here comes the rant. We are all on the same team. Why wouldn't you be excited that one of your patients is not only in remission, but is also using her experience to help others? Why wouldn't you support someone who's only goal in life is to live a decent, wonderful life? Why wouldn't you put away your business sensibilities for just a moment to congratulate, or at the very least, support someone who is working to spread the word among a variety of avenues?

All right - feeling better. I thank Dr O for all that she has done for me, but I have to be honest when I say that lately, I have felt rushed and pushed and almost as if my time in her office isn't worth the 3-5 minutes she spends with me. *sigh* I hate being a number.

On to better news...

I saw Kim twice yesterday. She looks fantastic. I spent a while shaving her legs (ladies, you can understand the relief she must have felt, right?), and we just talked. There were others there, and it was nice to get to know some of the people that she loves. I am going to head over there after work today, so that will be nice. She is really doing so well. We did a loop of the floor yesterday - she was walking, and there had to be a dozen people following her, like a Kim parade. It was awesome. They have posted pictures from yesterday on her website - I can't see them from here, but I can't wait to see if the one of her and I is on there.

What else? I am feeling like a big fat slob - I haven't worked out in over a week, and I'm noticing it in my belly and when I put clothes on. So, off the sweets and back onto the good foods and onto the SERIOUS workout regime. I see my hubby in 2 weeks - I need to kick this into gear!

The kids are doing well - I miss them terribly, but it's good to have this time to myself. I am really trying to make sure that I relish this, b/c I really don't know if/when I will get this time again. And, this is a really good exercise in letting me feel what it must be like for Levi. So, I can certainly appreciate that more now.

Hmmmm.....I'm sure there's more, but I can't think of anything right now. I am just trying to get things done, decompress, and relax. I did spend the weekend cleaning the house and cleaning up the yard, so that feels very productive. I don't have much planned for the week - visiting Kim, working out, and trying to enjoy the solitude. I do have to get materials for a benefit for Kim that I will be working the weekend before I head back to NY. They are having a volleyball camp for girls up at Glendale Community College - if you are local and interested, let me know. They have more help than they can use, but all are welcome. I will be there working the advocacy angle - so cool. This is one thing that Kim and I are adament about - we want others to know about this disease, and to be proof that you don't have to be over 50 and have a penis to have this disease - it happens to anyone. Repeatedly, this is what she's asked me to do, and I couldn't be prouder to do this, knowing (hoping) that someday, it'll be the two of us there, advocating for this.

I think spending time with her has been so good for me. It's been a good reminder of what I went through, which is horrible to say but definitely puts my current situation in perspective. It's been good for me emotionally to know that I am providing her with some comfort and some smiles. And, it's been good for me to become closer with her and her family - whatever happens, we will always have this time together, and I will be eternally grateful for this time. Kim is a wonderful person with a light inside her that is unending, and I am just so grateful to be able to consider her a friend.

I just had a memory from this morning - I was telling Levi that I spent almost an hour last night shaving Kim's legs, and he stopped talking. And waited. And, when I asked him what was wrong, he was wondering what happened next! LOL! Such a sick-o. Kim and I were laughing about it last night when I contemplated telling Levi about it - and, his reaction was pretty much what I expected! He's so funny.

Friday, July 24, 2009

JULY 24, 2009


A quick update here. The past week has been interesting. I spent last Saturday getting the kids packed up and spending time with them. Sunday, I took them and Dad to the airport, and I was fine until they started walking down the jetway. Then, it was tear city. Even the gate agent gave me the "Awwww." But, it all worked out fine - the kids made it to NY, are spending awesome time with their Dad uncles and grandparents, and are having an absolute blast. I have been busy all nights this week (purposely), so this weekend will really be the first time that I am in the house, by myself. We'll see what happens.

Financial update - I put a check in the mail today equalling one month's mortgage payment. It's not going to pull us back to even, but it definitely takes some stress off my shoulders. Now, onto the next month's worries...

This weekend, my goal is to clean the house - I mean, deep-down-scrub-things-to-within-an-inch-of-their-lives clean. I want to do what I didn't do before we moved in and what I had been hoping to do last summer before the cancer struck. I figured this is as good a time as any - no kids, no husband.....no bothersome requests. LOL! :-) I want to get the toys sorted and the closets cleaned out. We'll see what happens.

I went to visit with Kim last night - she's doing well. She was having some issues with pain meds not being administered properly, so we took care of that, but she's doing really well, considering what she's been through. I think she's sick and tired of people coming in a thinly-veiled attempt to say goodbye, as if she's dying tomorrow. I can understand that. It's hard when people feel obligated to come and see you - yes, she's sick and yes, she's fighting cancer, but come to say hi, relieve her anxiety and give the family a break - please don't come to her with the intentions of saying goodbye and walking out thinking you might not see her alive again. (I went through this as well, and I can totally get where she's at.)

What else? This weekend, as I said, is going to be quiet. I will go see Kim again, and I am actually looking forward to some quiet me-time.

Oh!!! I went to the therapist last night. Awesome meeting, and we have the next meeting set up. I think this is definitely going to help me work through some of the issues that I am feeling. We talked a but yesterday about so many things, and she seemed to understand where I was coming from. She also lost a husband to cancer ten years ago, and it helps to have someone that understands the horrors of fighting this disease.

All right - more later. I have a vent/rant coming forth, posting soon....not about me, about my oncologist. (Interested? Stay tuned....)

Comments:

Amanda: said...
Enjoy your free time! It's hard without kids, but just think how much stuff you'll be able to accomplish!! Good luck purging the house - that's my kind of therapy :)
July 24, 2009 at 10:39 AM
Blogger Carol Urban said...
I love to read your posts. Even if shit is flying and things are absolutely frikkin horrible you still sound so positive and full of love and hope. I love that! I identify with you in so many ways. Cancer sisters. Does that even apply? Women who meet up through a horrible disease and bond? Well I think so. :)
July 24, 2009 at 11:13 AM
Blogger Heat said...

Two thumbs up for a good therapist!

Two thumbs up for time to yourself!

That's four thumbs!

(Feelin' a little goofy...)
July 24, 2009 at 5:53 PM

Friday, July 17, 2009

JULY 17, 2009


http://www.kpho.com/payitforward/20081010/detail.html

If you have seen Kim's story, read her blog, or seen me post about her and her fight against this disease, you must must must must go to the link above and read the story.

Don't forget to get the tissues - you'll need them. I know I did.

I am so happy that her family got this. They deserve so much, and this one little thing would have made Kim's day. I can just see her smile and her family's joy as it must have been when they got the news.

Kim heads to CTCA on Monday for an evaluation. I am so glad for this. As you know, I went there last week, and was blown away at what they have to offer. I'm hoping that they can give Kim some hope. I'm also hoping that I can go see her next week.

I will admit that it's been tough on me personally watching Kim's decline. I am dealing with a lot of emotions - helplessness that I can't fight this off for her, guilt that I beat my cancer and she can't, anger that she and I and others are having to fight this blasted disease. I will be posting more in a while - the kids head out this weekend, and I'll have more time to sort through feelings, etc. I actually go to see a therapist on Thursday to help me deal with all that's going on - I'm hopeful that this will help me handle things a bit better. We'll see...

On a good note, in less than a month, I will be ignoring my facebook, twitter, webpages, and this blog, because I'll be in my husband's arms, enjoying life.

:-)

I can't wait.

Comments:

Amanda: said...
How cool for Kim and her family!
July 17, 2009 at 2:12 PM
Blogger Carol Urban said...

The results of my PET scan are that it looks like my cancer is back. There is a spot on the right ovary. There are at least four lymph nodes involved this time. One near the pancreas and others in the chest.

They want to biopsy what's in the chest. They aren't sure it's cancer. It could be an infection. They don't want to start chemo until we know what we're dealing with. He's only focused on one and that one is less than half an inch in diameter.

I don't know any more than that. I won't know more until I hear from my oncologist on 7/28. Yesterday's meeting was with my surgical oncologist in Pittsburgh.

They said they already know I respond well to chemo, it did extend my life one year already, so I'll do the same chemo (Folfox regimen) if it turns out to be cancer.

That's about it. Sorry it is bad news but it could have been worse. I cried all afternoon now I'm done crying about it and will deal with it.

We have not shared the news with family and my son Ralph & bride Jessica are still on their honeymoon. We won't tell anyone until they get back.
July 23, 2009 at 6:19 AM

Tuesday, July 14, 2009

JULY 14, 2009


...that I were able to get Cancerella bracelets made up. And, let's assume that, after covering the costs for the manufacturing, trademark, etc., that I were able to use the funds that I made to, say, benefit cancer advocacy groups....

...would you be interested?

Comments:

Nancy said...
yes ...I am ..its a good way to earn money for the fight...sending my love to you
July 15, 2009 at 3:26 AM
Blogger Heat said...
I personally would not, but I'm pretty sure I'm in the minority on that.

And I got your comment and will be getting back to you about it soon :)
July 15, 2009 at 7:13 PM
Blogger Carol Urban said...

Were you thinking of a logo something like what's on the boobie? Personally, I love it! I would buy one and give one to my sister in law (also CC survivor) and other members of my family.
July 16, 2009 at 6:45 AM

Saturday, July 11, 2009

JULY 11, 2009



I had a meeting on Thursday with the Cancer Treatment Centers of America, and it was awesome. Their facility is unlike anything I have ever seen before - if I have a recurrence or another tumor pop up, I want to be treated there. Unreal. It's a state-of-the-art facility with an amazing chemo room (that currently doesn't smell like chemo - a huge plus), beautiful in-patient rooms with flat screen TVs, a comfy chair and bed for family, and the room itself can immediately be turned into ICU rooms without having to move the patient. I could spend so much time going into the facilities here, but suffice it to say that this is THE place to have your treatment, in my opinion.

So, I went there to meet with the marketing people about i[2]y and it was such a successful meeting. I made some really good connections and had some amazing conversations. Molly, their marketing director, took me on a personal journey to visit her friend (31 yrs old, stage 4 non-small-cell) who is being treated there and needed someone to talk with. What an amazing honor, to be considered someone who can help her. I don't know that I did much - she had just been given some pretty strong meds and was literally falling asleep as I was talking with her, but she is this amazingly beautiful person that is fighting for her life. I only hope that somehow, I was able to give her an iota of help.

It was truly an amazing meeting (in spite of starving....) and I think that I am going to be able to forge some amazing relationships with people.

Friday, July 10, 2009

JULY 10, 2009


As Dr. McConnell said, I have a beautiful colon that looks perfectly normal. Who ever thought those words would be so wonderful to hear. Colonoscopy went well - prep wasn't as bad as it could have been (thank you, pills) and the test itself was done in 15 minutes. The hardest part was sitting in the waiting room for an hour, craving coffee and a pain killer for the massive headache.

Ironically, I had the same intake nurse and colonoscopy nurse, which was funny. They remembered Levi for his funny stories from last time, which was oddly comforting. Dr M said all looks well and (patting myself on the back) I look healthy and fit. Wow - those words have NEVER been said to me. LOL!

And, while I was in the procedure, Dr. Ondreyco's office called, and gave me the results of my bloodwork. CEA is at 1.1 (I think - either 1.1 or 1.3.....either way, good news) and I am pretty sure that number went down from my April tests; the rest of my bloodwork is also within normal limits.

Awesome.

So, barring any major issues that I can't foresee, I am still well within remission, and the doctor's appointment with Dr O on Thursday is just a formality. Which is fine with me.

Thus, I keep my cancer ass-kicker title, and I can keep on living life.

Sweet.

Comments:

Jill said...
PRAISE GOD, PRAISE GOD, PRAISE GOD!!!! Yay Michelle :) I am SO very happy to read this. I have been out all day and have been eager to get on the computer to hear the words "CLEAN COLON"!!! Woo-hoo. Now get in the car, drive to Lowes and get to painting :)
July 10, 2009 at 5:18 PM
Blogger Tina said...
yay! Such good news!! Someday I'll get to hear that too!!
July 10, 2009 at 5:35 PM
Blogger Whidbey Woman said...
:) I'm all smiles across the miles. Thank you, Lord for answering prayers!
July 10, 2009 at 5:42 PM
Blogger Daria said...
Good job ... all the best to you.
July 10, 2009 at 5:45 PM
Blogger Debbie said...
I have been worried all day! So glad to hear to fantastic news!!!! That's my cancer ass-kicking clean colon Friend!!! Way to go.
July 10, 2009 at 7:16 PM
Blogger Caroline said...
Great news! I love to hear cancer-ass kicking news!
July 11, 2009 at 4:43 AM
Blogger Heat said...

HOORAY! Isn't it funny, the phrases/sentences that you never thought would bring you such joy?

HOORAY for appointments that are formalities!!!
July 13, 2009 at 9:44 PM

Thursday, July 9, 2009

JULY 9, 2009


So, I prepped this morning, and am in the midst of the second one, so this will be a quick post. (If you don't know what this means, google it...)

Had a busy day - lots of advocacy phone calls and a meeting with Cancer Treatment Centers of America. Got tons done, and now, I'm off to spend some quality time with Mr. Toilet. Will post tomorrow post-colonoscopy.

Good thoughts.....good thoughts....

Comments:

Tina said...

Hope its easy and painless!! I'll be praying for clean and clear!
July 9, 2009 at 6:14 PM

Tuesday, July 7, 2009

JULY 7, 2009


I think I have a new nickname - Cancer-ella. Isn't that fabulous? I want a tee shirt....

Where did I get this? I have been watching (not very closely, admittedly, but watching) Lance Armstrong's quest for his 8th Tour de France, and he is in second place today. Woo! I went to an 
article and misread the name of the current yellow-shirted leader. The leader's name? Cancellara.

And, yes, I absolutely misread it. I read cancer-ella. Like, Cinderella, but with cancer.

So, I think a tasteful little tiara, perhaps a septer, wouldn't be out of order here.

And, I am TOTALLY going to try to get a tee shirt made. Will have to check cafepress - perhaps someone already came up with this brilliant idea. If not - I am TOTALLY marketing this.

Don't steal my idea. Unless you are getting me my tiara. :-)

Comments:

Carol Urban said...

I will find you a tiara, Miss Cancer-ella! Fer shur!
July 8, 2009 at 4:30 AM

Saturday, July 4, 2009

JULY 4, 2009


Happy 4th everyone. I won't go into too much detail, but this has been a decent week. I don't want to spend all day on the computer, but I wanted to pay my respects to those that have served our country, those that are serving our country, and their families. Thank you for everything you do - the sacrifices you make, the challenges and danger you face, and for your love of this country. It's people like you that make my life worth fighting for, and I couldn't be more grateful.

Be a true American today - thank a soldier.

(One of my favorite things to do in my local neighborhood - since we live so close to an Air Force base and have a large population of military families in this area - is to walk up to a soldier in uniform and thank him or her. They are usually running errands before heading home to their families, and this usually takes them by surprise and makes them smile. It makes me tear up every time, because I know that those small words mean SO MUCH to them.)

Later:


I forgot to blog about this earlier this week, and I apologize. :-) I became an aunt for the first (biological) time this week! My brother Bob and his fiancee Ashley had their baby on Wednesday, July 1st at 2:22 pm East Coast time. (Okay - well, Ashley had the baby after 30 hours of labor, and Bob supervised...). Isabella Rose was 7 pounds 1 ounce, and was 20 1/4 inches long. All are home and doing well, adjusting to life as a family of three.

Now comes the fun part - Bob and Ashley get married on August 15th. Who's taking my bet that the baby steals the show at the wedding?!?!


Introducing Isabella Rose to the world!!!




Isn't she gorgeous?!?!





Just checking things out - I can't believe how alert she is...

It's very tiring being out here....

Congratulations to Ash and Bob - I can't wait to meet my niece!!!

Later:



If you haven't checked out Kim's blog lately, please do. She's back in the hospital. I'm worried. Please, pray for her and her family....